Friday, December 20, 2013

Our New Normal

Merry almost Christmas, everyone!  We sure are enjoying the holidays.  Caleb is doing pretty well.  He's in super high spirits & happy as can be.  We are doing everything on our part to help his body continue to heal.  Sometimes I feel helpless, because I truly believe "we are what we eat".  Caleb only wants to eat potato chips.  That's it.  Nothing else.  This is the little boy, who just a few short months ago, adored broccoli, edamame, asparagus, spinach, and all things green.  I hear this all the time from other cancer patients' families, so I know it's not unusual, but it doesn't make it any easier.  That being said - we're only buying organic, all-natural, low sodium chips.  :)  Still offering him lots of goodies and hoping any day - he'll accept them.

We feel it's important that he's in the ideal environment, so we're monitoring the air he breathes.  All I've asked from Santa is a new water filter that will make sure the alkalinity of his water is perfect.  Zachary's teacher from last year is helping give us ideas about all of that, as she's been in a similar situation with her daughter & has already done the research.   That includes special bedding, as well.  Anything we can do to help, we're trying!

The boys were so excited about the new bedding, they hopped up on the counter top for a fun moment with Mrs. Donna Eller.  (closely supervised, of course, ha ha)

Caleb is having night terrors.  He often cries and screams throughout the night, which means very little sleep for the rest of the family.  We're not sure if this is from his medications or just the trauma of all he's been through.  The great thing - he has no recollection of it the next day. 

As for specific prayers, we'd love for you to consider asking God to help Caleb desire healthy food and to rest peacefully at night.  We feel that Cal will stay on his "medical map" much better if he's living, eating, and breathing everything that lives up to gold standards.  God bless you all.


  1. I think of and pray for Caleb on a daily basis . Have a very Merry Christmas and may your new year be filled with blessings and a complete cure for your precious Cal ! Sincerely , Robin Dillard

  2. Sometimes meds will make everything taste so bad. I know the high IV steroids I took for my MS were brutal. I hope he gets his taste buds back soon. He needs to keep his strength up and tater chips just won't do it.

    Melissa, you have been in my thoughts, especially when I see you on TV. I have a friend who has a 6 mo old going through the same thing, and I think how much you two could relate. My prayers are with you and your family during the trying time. Thank God Caleb has such a wonderful big brother to be on his side, and help him through the really rough days...or to just pick on him when Cal's down

    Best wishes for the Merriest Christmas ever Those boys (and mom and dad of course) deserve it! God bless you all.

  3. Words can not express how excited I was to see you and Caleb. I basically hung-up on Don! So excited for this upcoming weekend and Christmas right after!!! Bless you All and may Gods hands continue to be on Caleb and the family. MERRY CHRISTMAS and HAPPY NEW YEAR. A better year ahead 100%%, Love The Greens! XXXOOO

  4. Praying for y'all! My dad is going thru the same food issues. Wants lots of salt. Different than his usual.

  5. Caleb, Melissa and family just wanted to wish you all a very
    Merry Christmas! May God continue to bless each and every one of you throughout the new year. Caleb is always in my thoughts and prayers.